Little Oscar may have already undergone two bouts of emergency surgery, but he is still a bundle of fun. The bubbly seven-year-old loves coming to The Donna Louise and has been a frequent visitor since he was just one year old.
Oscar’s dad, Mark, says, “Oscar just loves coming to The Donna Louise; it makes a real difference to him. Even for a brief few moments we can forget about the challenges and difficulties and have some fun. For us, it gives us a bit of respite and is an incredible help.”
Oscar has CHARGE syndrome, a rare genetic disorder, which affects his heart, growth, eyes and ears. Oscar relies on a tracheostomy to breathe, is ventilated overnight and has to be fed via a tube. Despite all these challenges he is a happy, smiley chap who lights up the room.