Below are links to websites which provide useful information for families . . .
Together for Short Lives – the national charity for children and young adults with life-limiting conditions. They support families, professionals and services, including children’s hospices.
Hospice UK – the national charity offering support to hospice and palliative care professionals across the UK.
The following charities grant wishes for children and young people with life-limiting conditions:
Caudwell Children - www.caudwellchildren.com
Dreams Come True - www.dctc.org.uk
Make a Wish Foundation - www.make-a-wish.org.uk
Starlight - www.starlight.org.uk
Promise Dreams - www.promisedreams.co.uk
Rays of Sunshine - www.raysofsunshine.org.uk
Whizz-Kidz - www.whizz-kids.org.uk
Merlin's Magic Wand Charity (for complimentary theme park tickets) - www.merlinsmagicwand.org
The Care Team can also provide information about holidays, accommodation and experiences suitable for children and young people with disabilities please ask us.
The following organisations offer bereavement support:
The Dove Service
The Dove Service offers counselling and support to those struggling with the impact of bereavement, significant loss, or life changing/limiting illness. They provide services supporting children and young people, adults, learning disability and those supporting people with learning disabilities and also carers. They also offer clinical excellence in counselling and support for bereavement and loss achieving BACP Accreditation and ISO 9001 quality standards for counselling services.
The Dudson Centre, Hope Street, Hanley, Stoke-on-Trent, Staffordshire ST1 5DD.
Telephone: 01782 683155 / 683153
A Child of Mine
A Child of Mine is there to help and support anyone affected by the death of a child, in as many ways as possible. They support parents, siblings and all family members who have been through a bereavement of a child.
Helpline: 07803 751229 between 9am and 5pm.
Child Bereavement UK (CBUK)
Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement. Their vision is for all families to have the support they need to rebuild their lives.
The charity has experience in delivering the following direct services at a growing number of locations across the country:
- Individual, couple and family support sessions
- Parents' support groups for baby and child death and support through a subsequent pregnancy
- Children and Young People's groups (CHYPS) for children to attend with adult carers
- A Young People's Advisory Group (YPAG) for bereaved young people up to age 25 They also offer consultancy and bespoke solutions for organisations looking to address specific local needs.
Clare Charity Centre, Wycombe Road, Saunderton, Buckinghamshire, HP14 4BF.
Telephone: 01494 568900
Funeral Services Guide
More than a mere directory of quality funeral services' providers and suppliers, the comprehensive funeral services' guide goes one step further. The Funeral Services Guide aims to be the only online resource that you'll ever need when handling your, or your loved one's final affairs, covering everything from coping emotionally, to step-by-step guides on handling practicalities with minimal stress.
Funeral Services Guide Ltd, 20-22 Wenlock Road, London, N1 7GU.
The Bereavement Midwife Service at University Hospital North Midlands (Previously: UHNS)
University Hospital’s bereavement staff are here to help you during this difficult time. They will advise you on the practical steps you need to take following a death and offer help on coping with grief. Staff will also signpost you to various organisations that can help you sort out both practical and emotional issues.
Leaflets and booklets such as 'Helping you to cope with bereavement' which includes 'Registering a death at the Hospital' are also available from the hospital.
Advice can be given on the following:
- How to obtain a Medical Certificate of Cause of Death
- How to Register a death and obtain a Death Certificate
- What to do if a post mortem is necessary
- Visiting the Chapel of Rest
- How to organize the funeral
- Advice in relation to Funeral Payment from the Social Fund
- Provide booklet from the Department of Works and Pensions
- The procedure for disposal of foetal tissues, body parts and organs
- Who to inform following a death
- Signposting to Counselling and emotional support services
Telephone: 01782 676323 or 01782 676324.
Opening Times: 9:00am to 4:00pm, Monday to Friday (Closed Bank Holidays)
Specialist organisations providing accessible holidays and support
Tourism for All - www.tourismforall.org.uk
A national charity that provides information on accessible holiday venues and places in the UK and abroad for disabled people, their careers and family.
Revitalise - revitalise.org.uk
A national charity that specialises in short breaks throughout the year for adults and children (aged six and older) with physical disabilities, dementia or sight impairment, and their carers. The charity has holiday centres around the UK, and also offers holidays in Spain and Germany.
All Revitalise centres are registered as personal care centres and most are also registered as nursing care centres. However, the charity does not have the resources to provide holidays for people who are bed-dependent, or who have uncontrolled epilepsy, learning difficulties, or mental health problems.
The Disaway Trust - www.disaway.co.uk
A registered charity that organises group holidays internationally and in the UK for people with physical disabilities aged 16 to 80 years and their carers.
Holidays for All - www.holidaysforall.org
An umbrella website for various specialist tour companies and disability charities. Holidays for All has listings for a range of holiday providers who specialise in breaks for people with sensory and physical disabilities, their friends and carers around the UK and abroad.
Livability Holidays - www.livability.org.uk
A charity, and offers accessible hotel and self-catering holidays in the UK located by popular seaside venues.
DisabledGo - www.disabledgo.com
Online access information to more than 90,000 venues across the UK and Ireland.
My Family Our Needs - www.myfamilyourneeds.co.uk
The lifestyle site for families, carers and practitioners supporting children and young adults with additional needs.